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National Organization for Rare Disorders (NORD)

Logo for National Organization for Rare Disorders (NORD)

Alone we are rare. Together we are strong.

Organization profile from the Accessibility.com spotlight series. Written in 2020 to 2021 and kept as an archive, so details such as services may have changed.

Date Founded
1983
Industry
Community
Type
Nonprofit

Mission

NORD, a 501(c)(3) organization, is a national patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 320 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Services Provided

Education, research, advocacy, patient services.

How Many People Reached

The NORD website, www.rarediseases.org , receives an average of 1.4 million visits per month.

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