Rare Revolution Magazine

Mission

Rare Revolution Magazine's vision is a world in which people within the rare diseases community are empowered and informed. Where those affected by rare disease can have a voice and a community. Where rare disease collaboration benefits all.

Services Provided

NRG Collective Ltd (Rare Revolution Magazines's parent company) is a not for profit Ltd company by quarantining support to the rare disease community by providing platforms to raise awareness, provide education, and create cross condition communities. Rare Revolution Magazine achieves this through the following three activities.

1. RARE Revolution Magazine - platform and voice to patients, advocates and healthcare, clinical, research and industry professionals within the rare disease field.
2. RARE Revolutionaries community - a patient and advocate community enabling patients, carers and advocates to come together both virtually and locally for peer-to-peer support and sign-posting.
3. RARE Youth Revolution - a program providing young people affected by rare diseases a platform to be heard, combat isolation, learn real-life work skills, and a place to take ownership of and belong.

How Many People Served

Through its social media platforms, the magazine reaches in excess of 100k people per month. The website reaches 3500 people per month. Its free publication, RARE Revolution magazine, has over 20,000 readers per annum.

How Donations Are Used

All funds are used to deliver Rare Revolution Magazine's education and awareness campaigns.

Project Spotlight

RARE Youth Revolution relaunched in May 2020. This year's program is bigger and better with a brand new website and intern program bringing much needed work experience and training opportunities to those young people who also live with rare and complex conditions.

National or International Awards?

Finalist for the 2017 PPA Scottish magazine awards.

Interesting Facts

Over 350 million people around the globe have a rare disease. There are over 7000 diseases classified as rare however only 450 have a licensed treatment.